Functional Neurological Disorder (FND) : a patient's guide
including Functional/Dissociative (non-epileptic) Seizures, Functional Movement Disorder and other functional symptoms
Treatment of Dissociative Seizures / Attacks
What can you do to try to intervene when you get warning symptoms
1. Don't be alarmed! - are you having alarming thoughts when you get these symptoms?
These may be some of the thoughts you are having -
"will I injure myself?"
"am I 'losing it?"
"will this be really embarassing?"
"Is this epilepsy?"
"Might I die during an attack?"
There are answers to all these questions which are not as bad as you think
"will I injure myself?" ............................................Possibly, bruises and bumps are common and occasionally patients may break a bone although that is rare. Doctors working in this area do not see patients with life threatening injury . Part of you is aware during the attack, but you cannot remember it afterwards. This part of you appears to prevent really serious injury happening to you (or others, for example a baby). this cant be guaranteed and in particular a very small number of patients appear to 'self-harm' during attacks without realising it.
"am I 'losing it?" ...................................................No, you are losing control temporarily but you are not going crazy or mad
"will this be really embarassing?".........................Perhaps a bit, but is it really worth avoiding all the things youi like to do because of that?
"Is this epilepsy?".................................................No - if you're not sure why not then ask your doctor
"Might I die during an attack?".............................No - this has never happened
2. Try to distract yourself
The warning symptoms may 'rush over you' and it may be hard to focus on anything else but try to. In those few seconds before an attack your thoughts may be overwhelmed by the physical sensations you are feeling.
If you can learn to focus on something else or distract yourself this may help. For example
a. Count backwards from 100 to 0 in sevens, "100,93, 86, 79" or fours "100,96,92 etc"
b. Pick up a magazine and start reading it
c. Talk to someone
d. Try playing a computer game on a mobile phone or some other device
e. Try singing a favourite song
these are the kind of techniques that a psychologist can help you learn. They are also used to help people overcome panic attacks. Panic attacks and dissociative attacks are not one and the same thing. But they often have a lot in common, they are a bit like cousins
Another technique developed by researchers in Sheffield specifically for patients with dissociative seizures is called Sensory Grounding. (figure courtesy of Stephanie Howlett and Markus Reuber, University of Sheffield)
Learning to do something about the warning symptoms ...
But I don't understand what sets my seizures off ...?
...Even though you can't remember the attack, part of you is aware during the attack. ...
In a resting state, when you're not distracted, your body is much more vulnerable to going into an attack.
Patients with dissociative seizures are often really puzzled by the apparently random nature of their attacks.
Often they are completely random but sometimes they are less random than you might think. The commonest situations in which dissociative seizures occur are
1. Sitting or lying at rest, not really doing very much. In this resting state, your body is much more vulnerable to going off into an attack. In this resting state your brain is not focusing or distracted by other things. Its easier to be aware of physical sensations like breathing, heart beat or dizziness
2. In crowded situations / places where escape is difficult. Even if you are not consciously thinking about it, some patients with dissociative seizures will be more likely to have an attack in situations where the consequences of the attack will be more marked. Often this is crowded places, because having an attack in a shopping centre or a cinema for example, is likely to be more embarassing than having one at home. The more you anticipate the possibility of an attack and its adverse consequences the more likely it is to happen
3. Triggered by thoughts and memories. Some patients with dissociative seizures can come to realise that their attacks are actually triggered by unpleasant memories and thoughts
4. In medical situations. Patients often have attacks waiting to see the doctor or in the consulting room. This seems to be because of the anticipation of having to talk about the attacks with a doctors and simply thinking about them. Doctors sometimes think that patients are 'acting up' when they have them in these situations, not really understanding the usual reason for this.
When you are really feeling stressed, for example having an argument or rushing to get somewhere, your brain is often too distracted for the attack to take over. This is why dissociative seizures often don't occur when people are really stressed about something else.
3. Get other people to calm down
One problem can be that when you have an attack, people round about you become alarmed on your behalf. They may benefit from reading this website too. Even though you can't remember the attack, part of you is aware during the attack. If people around you are upset this will make you worse.
People around you should: Stay calm, supportive, make sure you have space around you, not put anything in your mouth, wait for the attack to settle and encourage you to get back up afterwards. You may even be able to carry on with what you were doing before, at work or at college for example.
Things that indicate you are making progress with these techniques include:
1. 1. You start to have more warnings. Often people have more warnings when the attacks first start. As they continue warnings may get shorter and shorted until they are not there at all. Sometimes people do get warnings which they forget as part of the attack. Relatives or friends may notice them going a bit blank or being unusually tired beforehand. As you learn more about the attacks it is possible to become aware of a warning phase that you had previously not known about.
2. You recognise the warning symptoms but are less alarmed by them. Understanding your diagnosis, understanding what dissociation is and what 'fight or flight' symptoms are can have the effect of reducing your overall alarm at the situation when it happens
3. Your warning symptoms are getting longer. This is one of the aims of treatment. The longer you can tolerate the warning symptoms without the blackout taking over, the close you are to eventually gaining control of them
4. You begin to avert some of the episodes. By learning to distract yourself or be less alarmed by the symptoms you may discover that you only have the warning symptom and not the blackout. If you can start to do this you are definitely making progress.
5. You have an attack when you remain conscious throughout. This can be frightening for patients who are usually unconscious or amnesic for an attack. But if this happens to you it shows that you are starting to get more awareness of the episodes and is a step in the right direction