Functional Neurological Disorder (FND) : a patient's guide
including Functional/Dissociative (non-epileptic) Seizures, Functional Movement Disorder and other functional symptoms
..the patient knows that these worries about the possibility of sinister disease are irrational but they can't shake them off...
This page explores the idea of 'health anxiety' a little more. You might want to read about anxiety and worry generally if you haven't done already
The commonest cause of anxiety or worry in patients with functional symptoms is worry about the symptoms themselves. What are they due to? Why doesn't anyone seem to believe me? Am I going mad? Is it something serious? Will I become disabled in the future?
These questions are understandable questions for people with symptoms to ask. When you go to the doctor you hope to be given an explanation about whats wrong with you.
Difficulties can arise however when
1. The doctor doesn't give an explanation. The doctor may say, "theres nothing to worry about", or "its stress related" (which might not sound like a good explanation if you are not feeling stressed). These kinds of explanations leave patients wondering what is wrong with them.
2. The patient doesn't believe the explanation they have been given. For example a doctor may tell a patient that their headaches are due to migraine or analgesic overuse but for them, the pain seems much worse than that and they remain convinced that they have a brain tumour.
3. The patient does believe the explanation but then irrational anxieties keep coming back (Health Anxiety). Some patients are given a reasonable explanation for their symptoms, and they feel temporarily reassured. But typically this feeling of reassurance only lasts a few days before doubts about the diagnosis and all the questions above start to resurface.
Usually the patient knows that these worries about the possibility of sinister disease are irrational but they can't shake them off. They may become increasingly anxious about whats going on and start to attend different doctors to get other opinions or simply to obtain reassurance. They may start attending out of hours services or accident and emergency departments .
Meanwhile increasing levels of anxiety about symptoms is making them worse, typically with worsening dizziness, headache and tiredness.
Increasing symptoms drives some patients to try to self diagnose themselves using the internet. This can throw up new and more frightening possiblities.
This last scenario is called health anxiety. Its actually very common, but difficult for patients and doctors to discuss. The concept of being a 'hypochondriac' is one which is generally laughed at in our society
But having health anxiety is actually very distressing for the person concerned. Their symptoms are very real, if they weren't they woudn't be causing so much worry.
Only a small proportion of patients with functional symptoms have high levels of health anxiety. Much of the health anxiety that doctors attribute to patients with functional symptoms comes from the fact that the patients have never been given an explanation of any sort for their symptoms (so its hardly surprising that they continue to feel anxious about them)
Health anxiety can only be treated once the patient and the doctor identify that it is present.
Once they realise this is the case, its important for the doctor to stop offering simple reassurance. These will only have a temporary effect and will need repeating.
Instead the doctor should work on explaining things in such a way that the patient has an explanation of the symptoms that 'fights off' alternative, more alarming explanations.
The patient, for their part may need to agree not to look at health information on the web or in books, and not seek other medical opinions.
Sometimes health anxiety can resolve quite dramatically and successfully once the patient knows what it is. But getting to that stage can be difficult.
Read Ian's Story on the Cases page for a description of what its like to have health anxiety.
Radio 4 broadcast a programme on health anxiety as part of their "Am I Normal" series. this has some really good patient experiences on it and explains how it can be improved
The video below is an episode of the show "Insight" from Australian TV network SBS - it was broadcast on 13th Sep 2016. For the first twenty minutes it highlights two patients with health anxiety which is mainly cognitive, ie they spend a lot of time thinking and being distressed by ill health thoughts.