Functional Neurological Disorder (FND) : a patient's guide
including Functional/Dissociative (non-epileptic) Seizures, Functional Movement Disorder and other functional symptoms
What is Functional Tremor?
Functional tremor is the commonest type of functional movement disorder.
In functional tremor there is uncontrollable shaking of part of the body usually an arm or a leg. This is due to the nervous system not working properly but not due to an underlying neurological disease.
Functional tremor is sometimes mistaken for Parkinsons disease or other causes of tremor such as 'Essential tremor'
Unlike Parkinsons disease, functional tremor is due to a reversible problem in the way that the nervous system is working.
This means that a functional tremor can improve and sometimes go away completely although there is no "magic treatment".
What are the symptoms of functional tremor?
A tremor is a rhythmical movement of an arm, leg or other body part such as the head. Functional tremor may come and go through the day. The tremor may become violent at times and change in speed.
Having a functional tremor can be disabling as the movements cannot be controlled (ie they are involuntary)
Functional tremor often begins quite suddenly but may be gradual. It may follow on from one of the following situations
1. A physical injury to the limb or pain in the limb. Functional tremor may occur as part of complex regional pain syndrome
2. After getting a tremor from a medical problem such as
a. a side effect of a medication
b. a faint with some jerky movements
c. an infection which had caused a high temperature and shaking (rigors)
3. After having a "fright" or a panic attack
4. With a symptom called 'dissociation' (spaced out or 'zoned out') which can happen without any feelings of fear.
5. An underlying mild additional cause of tremor such as 'essential tremor' has become amplified because of functional tremor
How is the diagnosis made?
The diagnosis of functional tremor is usually made by a neurologist. It can be a particularly difficult diagnosis to make because it requires expert knowledge of the full range of tremors due to neurological disease, many of which are unusual .
The following are some examples of things a neurologist would look for to diagnose functional tremor
1. Tremor that disappears transiently or changes in rhythm when copying movements with the good arm or leg. This is called the "entrainment test"
2. Difficulty making rhythmical movements with your good hand (or leg)
3. Times when the tremor is absent
4. Variable frequency (varying speed of how "fast" the shake is)
5. Tremor that gets a lot worse when someone tries to hold your arm or leg still
Am I imagining it then?
The answer is ‘no’ but click on ‘Am I imagining it’ to find out more
What is the treatment?
Have a look through the pages on treatment on this website
Do you have confidence in the diagnosis?
It is essential that you feel that you have the correct diagnosis. If you dont it will be hard to put into practice the rehabilitation techniques suggested here.
If you dont feel that you have functional tremor you need to look at what basis the diagnosis has been made. You should have some of the clinical features described above. If you do, why dont you have confidence in the diagnosis you have been given?
You do not need to be stressed to have functional tremor. In fact functional tremor is often most noticeable when peope are relaxed or not thinking about anything in particular. Perhaps you rejected the diagnosis because the doctor suggested it was "stress related"? - there may have been a misunderstanding if that was the case. We know that many patients with functional tremor do have stress as a cause of their symptoms, but many dont. So whether you have been stressed or not is not relevant to the diagnosis.
Specific physiotherapy techniques
(with thanks to Glenn Nielsen, Physiotherapist at Institute of Neurology, London)
All of these need to be practised repeatedly, and many will seem impossible or difficult to begin with. You are trying to break a 'habit' in your brain, that is not easy to do.
1. Attempt to make a voluntary tremor 'on top' of your existing tremor, perhaps with a sweeping arm movement like the conductor of an orchestra. then change the movements to wider and slower movements eventually bringing it to a standstill. Does your functional tremor stop briefly when you do this? Keep practising to see if this helps you get better control.
2. See if you can 'interfere' with the rhythm of your functional tremor by making a rhythmical movement with your "good" arm or leg. Ask a friend to make a tapping movement that you have to copy. The friend should start off with a steady rhythm but then speed up and slow it down which will make it harder for you to keep up. If the rhythm of the functional tremor changes depending on this 'external' rhythm, you could see if its possible to slow the external rhythm right down until perhaps it stops.
Have a look at the videos of doctors doing entrainment tests to get some ideas about this.
These are links to videos from an article
Roper et al. How to use the entrainment test in the diagnosis of functional tremor. Pract Neurol 2013;13:396-398
3. Learning to contract and relax muscles. Functional tremor often comes about because the person is contracting all the muscles of their arm or leg at once. Learning a technique called "progressive muscular relaxation" can help you get more control back over muscle contraction.
4. Look in a mirror when trying to do this. This may help your brain learn where its going wrong.
5. If your leg keeps 'bouncing' when you are sitting down, practise keeping your foot flat on the floor for as long as you can. It may feel odd when you do that, but you are helping to remind your brain that this is the normal position. You could also try tapping your 'normal' foot - ideally copying someone else who varies the movement for you. Sitting in a different way in your chair and placing your weight differently may also help.
Look on the treatment pages to find out more about specific treatments that may be relevant to you.
Functional tremor, can in some patients, be especially linked to anxiety.
Commonly feelings of anxiety link to the tremor itself, what will people think about me? Am I going to start shaking all over? Will that be embarrassing? But these are still feelings of anxiety
Many patients with functional tremor dont have anxiety, but if you do, it may be important to face up to that and seek specific tretament directed at controlling excessive worry. This can sometimes help.
Some patients report that episodes of tremor appear to 'get rid' of a build up of hard to describe, tense, dizzy symptoms. They dont want the tremor to happen, but recognise that when it does (if it happens as 'episodes') that it does seem to lessen those feelings. If this applies to you then it may be useufl to discuss that with your treating health professional.
Sometimes under hypnosis, tremor may improve and you may be able to learn self hypnosis to practice at home