Functional Neurological Disorder (FND) : a patient's guide
including Functional/Dissociative (non-epileptic) Seizures, Functional Movement Disorder and other functional symptoms
Tension type headache is misnamed because many patients with it are not stressed or tense. We also know that the problem is not just to do with tension of the muscles of the scalp.
I have included a page on headache here mainly to describe 'Chronic Daily Headache'. This can arise out of migraine or tension type headache and is quite common in people with other functional neurological symptoms. You can download a leaflet on the right
What is chronic daily headache ?
Chronic Daily Headache is the commonest type of headache that is referred to a neurology
clinic.It refers to a headache that is present most days, often for most of the day. Typically it
has the following features:
• Constant ‘pressing’ or ‘bursting’ sensation, sometimes pounding
• Can be all over head, on one side or sometimes in a small area
• It is often variable but tends to get worse as the day goes on
• Conventional painkillers only ‘take the edge’ off the pain
It is hard for others to understand how a headache can be so bad without any obvious cause
Other symptoms associated with Chronic Daily Headache
Often headache is not the only symptom that people with Chronic Daily Headache have. Below are some common symptoms that can go along with chronic daily headache.
• Fatigue / Tiredness
• Back or Neck pain
• Poor concentration
• Sleep disturbance (not enough or too much)
• Word finding difficulty
• Blurred vision
• Avoidance of bright light
• Frustration, Anger
• Low mood
• Lack of enjoyment
It doesn’t sound like a proper diagnosis...
Its true that Chronic Daily Headache is not a very glamorous sounding diagnosis. But it is widely recognised one in neurology and by the International Headache
Society. It can arise out of both migraine or tension type headache. The name often doesn’t do justice to the severity of the pain.
How can the doctors be sure that its not something else?
Chronic daily headache is a very distinctive clinical condition. Just as neurologists don’t do a brain scan to diagnose migraine, it is usually not necessary to have a brain scan to diagnose chronic daily headache. This is particularly true if the headache has been going
on for a few months.
Your doctor will have taken a careful history and performed a relevant examination. If they do not arrange a scan it is because they are confident about the diagnosis. They should have reassured you that there is not a sinister cause like a brain tumour.
Why has it happened?
Chronic Daily Headache is a complex phenomenon that probably has lots of different causes. Try thinking of the problem as a volume knob in your head that has been turned up too high.
As we understand more about the way pain works we know that there really are places in the nervous system, both in the nerve endings in the head and in the brain itself where this process of sensitisation and amplification of pain can occur. Try thinking of the problem as a volume knob in your head which has been turned up too high and which you need to turn down
These are some potentially relevant factors:
1. Migraine or Tension Type headache. The majoirty of people with chronic daily headache have a history of other headaches, usually migraine. When a series of migraines leads on to chronic daily headache it is sometimes called ‘transformed migraine’. Sometimes people experience their first migraine as an adult and it kickstarts a headache that just wont go away
2. Other Pain problems - If you have been prone to other chronic pain syndromes such as fibromyalgia (all over muscle pain), neck and back pain, abdominal pain and pelvic pain. There are complicated reasons why such a vulnerability can arise but it can be helpful to see a connection.
3. Stress. There does seem to be a link between stress and these sorts of headache. Stress makes this headache worse and the headache causes stress, both because its painful but also because it can be worrying. It is important to say that this is not a headache which is ‘all in your mind’ or ‘psychological’. But looking at stress and how you are feeling can make a big difference to your headache.
4. Using too many painkillers. In recent years we have recognised that using painkillers such as codeine and paracetamol can actually make chronic daily headache worse. You have probably already discovered that regular painkillers only ‘take the edge off’ the pain and don’t work well. In fact its worse than that, these painkillers often cause a ‘rebound headache’
when they wear off. Over time this can make the headache gradually worse
...Stopping regular painkillers is not easy but can be a vital step on the road to recovery..
Find out more about migraine and headache from the Migraine Trust
Types of Headache
There are many types of headache. You can read about them at the website of the International Headache Society.
The two commonest types of headache in neurological practice are migraine and 'tension type' headache. Many people have both types of headache as having one makes you more likely to have the other.
Most people with chronic headache have at least some migraine. The video below is a good introduction to migraine
Chronic headache is due to a volume knob turned up in the pain pathways in your brain..
What can I do to help myself get better?
After a while many patients with chronic daily headache find they are in a vicious circle of symptoms (see picture on right)
If you have had the headache for a long time it will take a long time to improve. These things may help:
• Feeling satisfied with the diagnosis. If you have ongoing doubts that the diagnosis is wrong then it will be hard to get better.
• If you have migraine, then treatment of the underlying migraine can help a lot. Find out more about migraine from the migraine trust
• Stop regular analgesics. Try as hard as you can to stop taking all regular painkillers. This includes ibuprofen, paracetamol and codeine. When you stop them your headache will normally get temporarily worse (for several weeks) before it improves. There
are two ways of stopping the tablets. Either set a date to stop them (like stopping smoking).
or gradually wean yourself off them.
• Improve your sleep habits. Go to bed at the same time every night. Avoid coffee, tea or coca cola after 6pm. Is your bed comfortable / too hot / cold?
• Drug treatment—so-called antidepressants such as amitryptiline can be helpful in these illnesses, even for people who are not feeling depressed. They are used in migraine and back pain as well. They are not addictive, like Valium or codeine. They work by promoting
sleep and helping to chemically ‘turn down’ the ‘volume knob’. You can get better without them
but they may well increase your chances of success. When you first start them you may experience side effects which should settle after a couple of weeks
• Look at stress/worry/mood. If you are under stress or feeling down for other reasons then finding ways to solve this may also improve your headache
• Other treatments. Neck physiotherapy may sometimes be offered. Alternative treatments such as acupuncture and massage are unproven but can help some patients.